The walls in the office of healthcare providers are made sound proof by the Health Insurance Portability and Accountability Act (HIPPA). Sound proof meaning that each patient’s healthcare information can only be shared between the provider and the patient; their information is required to remain confidential by law. In 1996, HIPPA was passed by congress; the act included regulations that would help to protect patient privacy and health information (Petersen, 2001). After reading the novel, “The Immortal Life of Henrietta Lacks” by Rebecca Skloot one may be appalled and think that what occurs in the novel is a complete violation of HIPPA. But, the time frame needs to be taken into consideration. At the time that Henrietta Lacks was alive, HIPPA …show more content…
When reading the novel, “The Immortal Life of Henrietta Lacks” by Rebecca Skloot, it is shocking to see how this whole case was handled. Doctors at John Hopkins Hospital took cells from Henrietta without her knowledge or consent and went on to create the first line of human immortal cells that would help make the polio vaccine and find cures for cancers. Also Henrietta’s name and personal healthcare information as released to the general public without her family even being aware that these cells existed (Skloot, 2011). When reading this novel in the current time it can be shocking, because major violations of patient privacy and lack of informed consent is now protected by federal law. Unfortunately, Henrietta could not be protected by the federal acts such as HIPPA that we have today. It would be easy to argue that in the case if Henrietta Lacks there is major violations involving HIPPA, but one cannot argue that due to the time period her case occurred in. If this situation occurred in the current day then there would be major consequences for those who released all of Henrietta’s medical information, including large fines and even jail time. Now violation of HIPPA is an ethical dilemma, while back in the time of Henrietta, HIPPA did not exist so it can not be argued that her case violated this federal law that protects all of us as patients
In the Immortal Life of Henrietta Lacks by Rebecca Skloot, the author demonstrates the harsh realities that many African Americans faced in the medical and scientific field during the mid 20th century. The author shows the unjust practices of this time period through interviews with the Lacks family and medical professionals. These harsh realities are proven when Skloot talks to Henrietta’s family. Henrietta’s husband, Day, explains how they took samples from Henrietta’s body without consent when Skloot writes, “Day clenched his remaining three teeth. "I didn't sign no papers," he said.
“They certainly give very strange names to diseases.” - Plato Rebecca Skloot wanted to get this word across about how race, class, ethics, and other factors play a role in the science world today. Especially with the need of biological samples for research. When Skloot first found out about the cells, her father had gotten sick with an illness that was undiagnosable. Once it was determined he had brain damage, he had enrolled in a medical study.
Henrietta’s cell helped us fight a lot of diseases just because her cells
In the article written by ANNAS had a guy named Justice Broussard who backed me up by saying that since the patients don’t have a right to their cells when they leave their body and only people that have rights to them are the drug and medical companies (ANNAS, 1190). This just proves that us patients are losing finically since we do not get a cut of the profit these companies and doctors get from our cells in research. It also breaks the fairness principle in the CFP
Born in Roanoke, Virginia on August 1, 1920, Henrietta Lacks would one day unknowingly be the reason for one of the most important cell lines in medical research. Henrietta Lacks became the source of HeLa cells after her death on October 4, 1951 (aged 31), cells which were the first immortalized cell line in history; immortalized cells are cells that will reproduce indefinitely under specific conditions. While Henrietta’s cells were and continue to be used to treat many illnesses, there was never any consent given from Henrietta herself, or any of her family. To this day, no portion of the billions of dollars made from HeLa cells ever found it’s way to Henrietta’s family. The medical ethics in the 1950’s are very questionable in comparison
Having the opportunity to discuss the impact of medical research performed on Henrietta Lacks’ cells with doctor George Guy would be an experience like no other. Through the use of Henrietta Lacks’s cells, George Guy created an industry that would fuel research throughout the scientific community. When Henrietta Lacks was admitted to the hospital for radiation treatments, doctors took samples of her cervical cancer cells. Henrietta was not informed that one of the two samples was sent to George Guy, a scientist researching the immortalization of human cells. Guy soon realized that these cells were able to grow outside of the human body, they even grew rapidly.
Sonali Sagar Block: 2B May 12th 2015 The Degradation of Morals and Ethics In the book, The Immortal Life of Henrietta Lacks the author Rebecca Skloot tells us about a non-fiction story of an African American women who is diagnosed with cervical cancer and how the medical community exploited her for use of her “immortal” cells. From then onwards the cells have been used for widespread medical advancement and research. There is no denying the good that has come from this as even the polio vaccine was developed from these HeLa cells. Moreover, it has also been aiding with finding a cure for cancer as well as assisting with further research on AIDS.
TIC673 HeLa Assignment 2018 In one of the best seller novel, “The Immortal Life of Henrietta Lacks” the author Rebecca Skloot describes about the first human immortal cells that lived in laboratory culture and about the story of black, 31-year-old woman from whom these cells were obtained. The cells which not only proved to be most important in the field of medicine but also brought medical revolution were obtained from her without her or her family’s knowledge leading to the most debatable ethical issues. The following essay would describe the cell’s contribution to science, how they were obtained and some of the ethical issues violated. Henrietta’s cells did much good for the society.
In the 1950s the first ‘immortal’ human cells were grown from a cancerous tissue sample taken from Henrietta Lacks, a poor black woman, without her knowledge or consent. She had died shortly after, at the unfortunately early age of 31, of a severe case of cervical cancer. Henrietta had a list of ailments that included neurosyphilis, gonorrhea, and HPV the leading cause of her cervical cancer and, ultimately, her death. The hospital that had diagnosed her cancer, Johns Hopkins, had supposedly been one of the best hospitals in the country, but it participated in discriminatory and amoral research practices when treating African Americans. Not only taking taking Henrietta’s cells without her consent, but injecting them and other cancer cells into patients without their knowledge.
The issue of privacy has been one dating back to the beginning of society. In order to protect it we have erected walls around us and called them homes, fences and called them territories, borders and called them countries. As the modern day arrived, society innovated to the point that ownership and privacy are no longer clear. Science has developed at a rate where morals and laws cannot keep up, more specifically, in the medical department. Such a problem is detailed in Rebecca Skloot’s book The Immortal Life of Henrietta Lacks.
Participation Portfolio 1 Asst 3: Henrietta Lacks Discussion Questions Please answers each of the following questions, and be prepared to discuss in class 1. Please outline the history of Henrietta Lacks 's tissue cells. Who did what with the cells, when, where and for what purpose? Who benefited, scientifically, medically, and monetarily?
Racism in The Immortal Life of Henrietta Lacks Imagine your mother, sister, wife, or cousin was diagnosed with cervical cancer and you believed the doctors were doing everything in their power to help her. Only later you discovered her cells were used for research without consent and she was not properly informed of the risks of her treatment due to her race. This story happened and is told by Rebecca Skloot in The Immortal Life of Henrietta Lacks. Skloot use of narrative and her writing style enhances the understanding of the story. Henrietta Lacks was a young black woman who was diagnosed with cervical cancer at John Hopkins Hospital.
“Was It Illegal for Doctors to Take Cells from Henrietta Lacks Without her Consent?” How can you take cells from a human being and treat them as clothes that you’re just selling. In The Immortal Life of Henrietta Lacks, Rebecca Skloot told the story of the woman behind the famous cell line and the fact that her family did not know about Lacks’ immortal cells until more than 20 years after her death. Some believe it was legal to take Mrs. Lacks cells, while others disagree and say it’s illegal. It was definitely illegal for the doctors and scientist to take Henrietta’s cells without her consent.
The final violation of ethical principles, in the story of Henrietta Lacks, was the violation of justice. Without the contribution of Henrietta’s cells, many discoveries and vaccines, such as the vaccine that conquered Polio, would not have made their pivotal breakthroughs in biomedical research. Her direct and unknowingly, supportive contribution helped save many people’s lives all over the world. Unfortunately, her named did not receive the recognition it deserved, and her family never received any compensation for profits made from direct use of her
Scientists and doctors made great discoveries with the HeLa cells of Henrietta Lacks. The family of Henrietta Lacks had to live with the aftermath of decisions made by doctors and